Collaborate
Collaborate with us
GENRARE is a platform built on collaboration. We have clinical professionals, researchers, patient associations, and other stakeholders committed to advancing the knowledge and management of rare diseases.
There are different ways to participate in GENRARE: contributing data, promoting new sub-registries, advising from scientific committees, or requesting access to existing data to promote new studies.
Discover how you can become part of this collaborative network based on your profile:
Clinicians and researchers
Participate in active registries: Contribute data through the following form
Propose a new sub-registry: If your group belongs to CIBER and wants to create a new one specifically for a rare disease, access here:
Request access to data for research:
Patient associations
If you represent a patient association: Write to us at [email protected] to find out how to participate.
Private entities
You can request access to GENRARE data by following the ethical and responsible use policies.
CONTACT
Want to learn more about GENRARE or collaborate with our network?
We're here to answer your questions, provide information, or explore new ways to get involved.