Who we are
What is CIBERER?
The CIBER for Rare Diseases (CIBERER) is a collaborative research structure of the Center for Biomedical Network Research (CIBER), dependent on the Carlos III Health Institute (ISCIII), which brings together more than 50 research groups and 16 clinical groups in the field of rare diseases.
GENRARE Scientific Committee
The GENRARE Scientific Committee is composed of expert clinical staff and researchers who advise on the creation, management, and use of the registries. This committee also evaluates data access requests and publication proposals.
Current members of the GENRARE Scientific Committee:
| Name | Institution |
|---|---|
| Eduard Gallardo | IR Sant Pau , CIBERER |
| Andrés Nascimento | Hospital Sant Joan de Déu, CIBERER |
| Cristina Domínguez | Hospital 12 de Octubre, CIBERER |
| Eduardo López Laso | Hospital Reina Sofía, CIBERER |
| Luis Querol | Hospital de la Santa Creu i Sant Pau, CIBERER |
| Sonia Segovia | Hospital de la Santa Creu i Sant Pau |
| Elena Cortés | Hospital de la Santa Creu i Sant Pau, CIBERER |
| Guillermo Lazcoz | CIBERER |
Scientific support and management team
The GENRARE management team is made up of CIBERER staff responsible for the design and maintenance of registries, user support, and general coordination.
Scientific managers and support staff:
| Name | Institution |
|---|---|
| Beatriz Gómez | CIBERER |
| Virginia Corrochano | CIBERER |
| Miguel López de Heredia | CIBERER |
CONTRIBUTORS
CONTACT
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