{"id":467,"date":"2026-01-20T16:19:48","date_gmt":"2026-01-20T15:19:48","guid":{"rendered":"https:\/\/genrare.ciberisciii.es\/colabora\/"},"modified":"2026-06-10T18:08:22","modified_gmt":"2026-06-10T16:08:22","slug":"collaborate","status":"publish","type":"page","link":"https:\/\/genrare.ciberisciii.es\/en\/collaborate\/","title":{"rendered":"Collaborate"},"content":{"rendered":"\n
\"\"<\/span>
\n

Collaborate<\/h1>\n<\/div><\/div>\n\n\n\n
\n
\n
\n
\n

Collaborate with us<\/h2>\n\n\n\n

GENRARE is a platform built on collaboration. We have clinical professionals, researchers, patient associations, and other stakeholders committed to advancing the knowledge and management of rare diseases.<\/p>\n\n\n\n

There are different ways to participate in GENRARE: contributing data, promoting new sub-registries, advising from scientific committees, or requesting access to existing data to promote new studies.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n

\n
\n

Discover how you can become part of this collaborative network based on your profile:<\/h3>\n\n\n\n
\n
\"\"<\/figure>\n<\/div>\n\n\n

Clinicians and researchers<\/p>\n<\/div>\n\n\n\n

Participate in active registries:<\/strong> Contribute data through the following form<\/p>\n\n\n\n

\n
Participation form<\/a><\/div>\n<\/div>\n\n\n\n

Propose a new sub-registry:<\/strong> If your group belongs to CIBER and wants to create a new one specifically for a rare disease, access here:<\/p>\n\n\n\n

\n
Sub-registry form<\/a><\/div>\n<\/div>\n\n\n\n

Request access to data for research:<\/strong><\/p>\n\n\n\n

\n
Request access to data for research<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n
\n
\n
\n
\"\"<\/figure>\n<\/div>\n\n\n

Patient associations<\/p>\n<\/div>\n\n\n\n

If you represent a patient association:<\/strong> Write to us at genrare@ciberisciii.es <\/a>to find out how to participate.<\/p>\n<\/div>\n<\/div>\n\n\n\n

\n
\n
\n
\"\"<\/figure>\n<\/div>\n\n\n

Private entities<\/p>\n<\/div>\n\n\n\n

You can request access to GENRARE data by following the ethical and responsible use policies.<\/strong><\/p>\n\n\n\n

\n
Form for private entities<\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Collaborate with us GENRARE is a platform built on collaboration. We have clinical professionals, researchers, patient associations, and other stakeholders committed to advancing the knowledge and management of rare diseases. There are different ways to participate in GENRARE: contributing data, promoting new sub-registries, advising from scientific committees, or requesting access to existing data to promote… Continue reading Collaborate<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false,"footnotes":""},"class_list":["post-467","page","type-page","status-publish","hentry","entry"],"_links":{"self":[{"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/pages\/467","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/comments?post=467"}],"version-history":[{"count":8,"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/pages\/467\/revisions"}],"predecessor-version":[{"id":667,"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/pages\/467\/revisions\/667"}],"wp:attachment":[{"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/media?parent=467"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}