{"id":473,"date":"2026-01-20T16:19:59","date_gmt":"2026-01-20T15:19:59","guid":{"rendered":"https:\/\/genrare.ciberisciii.es\/quienes-somos\/"},"modified":"2026-06-10T12:25:28","modified_gmt":"2026-06-10T10:25:28","slug":"who-we-are","status":"publish","type":"page","link":"https:\/\/genrare.ciberisciii.es\/en\/who-we-are\/","title":{"rendered":"Who we are"},"content":{"rendered":"\n
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Who we are<\/h1>\n<\/div><\/div>\n\n\n\n
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What is CIBERER?<\/h2>\n\n\n\n

The CIBER for Rare Diseases (CIBERER) is a collaborative research structure of the Center for Biomedical Network Research (CIBER), dependent on the Carlos III Health Institute (ISCIII), which brings together more than 50 research groups and 16 clinical groups in the field of rare diseases.<\/p>\n\n\n\n

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GENRARE Scientific Committee<\/h2>\n\n\n\n

The GENRARE Scientific Committee is composed of expert clinical staff and researchers who advise on the creation, management, and use of the registries. This committee also evaluates data access requests and publication proposals.<\/p>\n\n\n\n

Current members of the GENRARE Scientific Committee:<\/h3>\n\n\n\n
Name<\/th>Institution<\/th><\/tr><\/thead>
Eduard Gallardo<\/td>IR Sant Pau , CIBERER<\/td><\/tr>
Andr\u00e9s Nascimento<\/td>Hospital Sant Joan de D\u00e9u, CIBERER<\/td><\/tr>
Cristina Dom\u00ednguez<\/td>Hospital 12 de Octubre, CIBERER<\/td><\/tr>
Eduardo L\u00f3pez Laso<\/td>Hospital Reina Sof\u00eda, CIBERER<\/td><\/tr>
Luis Querol<\/td>Hospital de la Santa Creu i Sant Pau, CIBERER<\/td><\/tr>
Sonia Segovia<\/td>Hospital de la Santa Creu i Sant Pau<\/td><\/tr>
Elena Cort\u00e9s<\/td>Hospital de la Santa Creu i Sant Pau, CIBERER<\/td><\/tr>
Guillermo Lazcoz<\/td>CIBERER<\/td><\/tr><\/tbody><\/table><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n
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Scientific support and management team<\/h2>\n\n\n\n

The GENRARE management team is made up of CIBERER staff responsible for the design and maintenance of registries, user support, and general coordination.<\/p>\n\n\n\n

Scientific managers and support staff:<\/h3>\n\n\n\n
Name<\/th>Institution<\/th><\/tr><\/thead>
Beatriz G\u00f3mez<\/td>CIBERER<\/td><\/tr>
Virginia Corrochano<\/td>CIBERER<\/td><\/tr>
Miguel L\u00f3pez de Heredia<\/td>CIBERER<\/td><\/tr><\/tbody><\/table><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n
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CONTRIBUTORS<\/h2>\n<\/div>\n<\/div>\n\n\n\n
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<\/div>\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

What is CIBERER? The CIBER for Rare Diseases (CIBERER) is a collaborative research structure of the Center for Biomedical Network Research (CIBER), dependent on the Carlos III Health Institute (ISCIII), which brings together more than 50 research groups and 16 clinical groups in the field of rare diseases. GENRARE Scientific Committee The GENRARE Scientific Committee… Continue reading Who we are<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"inline_featured_image":false,"footnotes":""},"class_list":["post-473","page","type-page","status-publish","hentry","entry"],"_links":{"self":[{"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/pages\/473","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/comments?post=473"}],"version-history":[{"count":7,"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/pages\/473\/revisions"}],"predecessor-version":[{"id":661,"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/pages\/473\/revisions\/661"}],"wp:attachment":[{"href":"https:\/\/genrare.ciberisciii.es\/en\/wp-json\/wp\/v2\/media?parent=473"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}